A graphic that states, "The population of people with rare diseases equals that of the world's 3rd largest country." Graphic by Rare Disease Day | The Eagle
A graphic that states, "The population of people with rare diseases equals that of the world's 3rd largest country." Graphic by Rare Disease Day | The Eagle

The Rarest Day: Rare Disease Day brings attention to patient experiences

One common struggle for those with rare diseases is an inability to get an accurate diagnosis after years of unexplained and unpredictable symptoms.


Not all disabilities are rare: a disease is considered rare if it affects less than 200,000 Americans, according to the National Organization for Rare Disorders. With over 6,000 identified rare diseases, patients have a wide range of different symptoms and struggles. But even among patients with drastically different diseases, they often share similar experiences. These shared experiences are the foundation for the rare disease community, a part of the disabled community that some say provides them with comfort, hope and support. Read more…


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